Praise!!
DominikR@TLCcares.org
Thursday, February 27, 2014
Hi to all my friends!
I have a great praise report!!! Mommy and Daddy decided to change my seizure medication and guess what?? My Central Apnea issues are going away! It has been over 1 month since my last apneic episode. Mom and dad are very excited for this!
Here is my quick update for you:
We made a round trip visit to a special doctor at UCSF, he helped me get started on a new medication. It is having some negative side effects though ... mommy says we need to give it more time, because right now I am on 3 different medications.
The doctor was really great! He is working with mom and dad by email so we can get my meds right!
I have been in my own bed for about 2 weeks now! I LOVE my own bed!! It is really comfortable and it's my very own! I had a few really good nights, where I slept til 5AM. Daddy was really excited ... alas, it didn't last long! I went back to getting up for hours at a time every night! Mommy will update you more on that in her Journal. Don't forget to check it out!
I have been doing well on my moving! My scoliosis is becoming very flexible and I'm able to do more to the right! I also have been using my mouth more and more! I love apples and carrots! Mommy wants to get me some mango to try! I am really enjoying being able to control my food! Mom puts it in my hand and I can bring it to my mouth when I want too! My speech ladies are really excited too!
I am really excited for the up coming week ... we get to go on a vacation! I can't wait!! :-)
Thank you all for your continued support and prayers ... keep mommy and daddy in your prayers too! I know they are very tired and struggling with some decisions!
I LOVE YOU ALL!!!!